How To Better Understand A Loved One With Alzheimer’s

NOTE:  I wrote this after viewing the Edge of Humanity Magazine’s post on March 6. The title is The Faces of Alzheimer’s Disease, a contribution of portrait photography by Alex ten Napel. Please take a few moments to view the images here.


Alzheimers FaceREV

If you’ve ever spent time in an Alzheimer’s/Dementia unit then these faces should look familiar. 

Not the individuals themselves, but their expressions and the moods they reflect. These faces range from thoughtful and smiling to frustrated and expressionless. They’re like the ones we all display at various times. 

The difference is that ours are prompted by clear thoughts and emotions, triggered by specific circumstances. An Alzheimer’s patient often can’t account for what they’re thinking and feeling at any given moment. 

The folks looking thoughtful may actually be unable to focus, their minds overrun with many simultaneous thoughts. They quietly struggle to locate memories or ideas.

Those who are smiling with amusement sometimes do so for no apparent reason. At times they’ll burst into giddy laughter as if they’re privy to some joke that no one else knows.

Then there are the angry, frustrated episodes as the patient lashes out with rage and profanity at everyone around them.

A blank stare can indicate that the person has momentarily disappeared deeper into the fog that is gradually taking over their conscious mind.

The unpredictability of these mood swings is unnerving for family and friends who are slowly watching their loved one slip away.


Alzheimer’s is a progressive neurodegenerative disease that destroys healthy brain cells. The symptoms worsen over time and a person can suffer with it from four to eight years on average. Depending on the circumstances some people have survived up to twenty years after diagnosis. 

ChangeChanges in the brain begin to occur years before any symptoms present themselves. This is referred to as the “preclinical” period. 

Looking back I recall times when my dad behaved oddly or had difficulty doing a task that he’d done a hundred times.

He took medication for high blood pressure, cholesterol, and diabetes for years, but, we weren’t aware of the changes occurring in his brain.

I don’t know if his doctors warned him about dementia as a possible outcome of his other conditions. If they did he didn’t share that information with our family.


The Three Stages of Alzheimer’s

  • Mild (Early Stage) – In the earliest stages of the disease, the person is still able to function independently. They continue their normal routines with only slight lapses of memory and minor confusion. Family members may begin to notice their difficulties. A trained physician can detect problems with concentration and memory through a detailed exam.
  • Moderate (Middle Stage) – This is the stage that typically lasts the longest, sometimes for years. Symptoms become much more obvious and the loved one requires a greater level of care. 
  • Severe (Late Stage) – Patients in this stage require full-time assistance with daily activities and personal care. They have difficulty communicating and lose awareness of their surroundings. Their physical condition worsens along with their mental state.

Alzheimer Brain

It’s important to become familiar with these stages so that caretakers can understand what the patient is experiencing.

The confusion and disorientation that begins in the middle stage influences the person’s perception of reality. 

They also experience communication problems. At times they have difficulty expressing their thoughts and feelings and can’t understand what others are saying. They struggle to remember the meanings of words.

This level of disorientation creates fear, anger, and embarrassment.


Despite the ongoing challenges, there are strategies available to handle these problems. Marie Marley has authored two books and numerous articles on ways to deal with the behavioral issues of dementia patients. In the past, she has focused specifically on the very difficult job of being a caretaker.

However, after reading The Best Friends Approach to Alzheimer’s Care Marley realized that she’d never considered how the patient feels. The book, written by Virginia Bell and David Troxel, explains it in a way that the reader can experience those feelings. 

In Marley’s post, she gives an example from the book that really drives this point home. The authors remind the reader of how it felt to be called on in class and not know the correct answer. Then they point out that life for an Alzheimer’s patient is living in that classroom every day and never having the correct answer. 

 Education is the key to understanding how the illness affects the patient both mentally and physically, and how to manage their care more effectively.


The  Alzheimer’s Association is an excellent starting point for your research. They are the leading voluntary health organization committed to caring, support, and research for Alzheimer’s/Dementia patients and their families.

Because there is no cure, Alzheimer’s eventually renders the person completely dependent and powerless.

But, knowledge is power and being able to provide compassionate and informed care is something that benefits both patient and caretaker.

It is also the best and final gift we can offer our loved one.


 

 

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9 thoughts on “How To Better Understand A Loved One With Alzheimer’s

  1. My Mom and a couple of my Aunts had Alzheimer’s. It is one of the worst diseases out there. You are stripped from your life of memories. In the early stages my Mom would look at me and say “I think I know you?” To which I would reply, “Yes, I am your baby!” She would smile and had no memory of me being her child. Later stages I would look into her eyes and could see her spirit left her body, she wasn’t even able to speak. It was the hardest thing I had to go through and every day I pray that I don’t end up that way. I would rather die.

    Liked by 1 person

    • If only I had learned more BEFORE my dad’s diagnosis I may have handled it better. I go to the treadmill every day, not because it helps me lose the menopausal weight gain (because it doesn’t) but because I don’t want this disease to get me. I want my post to encourage others to be proactive and get educated. Maybe they’ll recognize it sooner and be better prepared. Or, maybe they’ll be lucky and never have to deal with it. Thanks for your feedback & hugs to you; I understand your heartache. : (

      Liked by 2 people

    • I’m sorry to hear about your uncle and yes…Alzheimer’s is reaching epidemic proportions. It does make you wonder why (same with cancer, diabetes, etc.) Obviously, our diet is playing a big role in these diseases. I also wonder about storing/heating so much of our food in plastic. Maybe it’s time to go vegetarian, invest in various sizes of glass containers & start a garden! Thanks for your comment.

      Liked by 1 person

  2. Thank you for this post. I think it is a real gift for anyone who had a loved one suffering from Alzheimer’s disease. Especially the resources and the idea of trying to understand what actually having Alzheimer’s must feel like.

    Liked by 1 person

    • As with anything having enough time to prepare really helps. And when you’re feeling overwhelmed it’s easy to forget what others around you are feeling (the patient, other family members, etc.) There are many strategies to deal with this & people need to reach out for support. Thanks for your comment.

      Liked by 1 person

  3. Pingback: Understanding Alzheimer’s – Site Title

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